Two mums from Surrey are organising a walk to raise money for a charity that funds research into a life-limiting condition for children.
Klara Cecmanova, 41, and Vicky Lush, 49, from Epsom have organised The Box Hill Walk as part of local charity, Harrison’s Fund’s Harrison’s Brunch campaign. The walk starts at 9.45am on Sunday, 30th June at Box Hill Viewpoint and sees walkers walk down the hill and back up the steps to the top, followed by a bring your own picnic.
Klara has been a big supporter of the charity since two of her boys Theo (7) and Oskar (5) were diagnosed with Duchenne Muscular Dystrophy in 2014.
She said: “Due to their condition, both Theo and Oskar would struggle to walk up Box Hill, their muscles just aren’t strong enough.
“We would love to see as many people as possible at the top of Box Hill ready to help our little warriors down the steep slope, over the stepping stones, and back up the stairs to the top – a tough walk for those that are fully fit but almost impossible for our boys.
“We’ll be able to see the area we live in from the viewpoint so they’ll get a real kick out of this and once back at the top we’ll be relaxing with rugs and a picnic so bring your own and get to know us and your local community.”
Harrison’s Fund was set up in 2012 and funds research into Duchenne – a rare genetic condition which affects all the muscles in the body, causing them to waste away. Harrison’s Fund’s goal is to get as much money as possible into the hands of the world’s best researchers, who are working to find a cure for Duchenne. The charity is currently funding 16 research projects in the US and the UK.
Klara and Vicky have been raising money for the charity since 2015 when she was part of a local team of women to put on a big community event. Since then it has become an annual event organised by parents with children of the same age who have seen the boys grow from active little boys to becoming increasingly wheelchair bound. The walk is part of the charity’s Harrison’s Brunch campaign which encourages everyone to host a brunch during the month of June to raise money.
Luci Roberts, campaigns executive at Harrison’s Fund said: “Theo and Oskar, like all boys with Duchenne, are an inspiration to us all. Even though their little bodies are slowly failing them, inside, they are just still, little boys who love an adventure, so we hope the local community will join them on their own adventure this June.”
All the proceeds from Harrison’s Brunch will go directly to fund the purchase of a “high throughput analyser” which enables scientists to compare different gene medicines when working in a lab. By using computer automation, the analyser can screen different models and evaluate them in a fraction of the time it would take a team of scientists.